Cluster headache, nicknamed “suicide headache”, is a neurological disease that involves, as its most prominent feature, an immense degree of pain. “Cluster” refers to the tendency of these headaches to occur periodically, with active periods interrupted by spontaneous remissions. The cause of the disease is currently unknown. We could go into great detail, but maybe it’s better if you hear from real patients.

CHSG Official Awareness Videos

Rare Disease Network Interview, Oct. 2017

 

Patient Videos for CNN Feature, Nov. 2017

 

3 Comments

  1. Mi son is 5 years old and we believe He suffers from Cluster headache, he has been going to different doctors, MRI’s and the doctors have not find what is wrong with him or why he gets this time of headaches.

  2. My 5 year old son suffers from Cluster headaches, what kind of practice physician can subscribe his Oxigen ?

    1. Any doctor can prescribe oxygen. The problem is that too many of them don’t understand cluster headaches or how to treat them. A pediatric neurologist is where we started for my daughter. I myself am a nurse practitioner that started prescribing oxygen for my daughter (after the neurologist suggested trying it) that suffers from terrible cluster headaches, and since then, I have gained several cluster headache sufferers as patients, because I’m the only provider they have found who will prescribe whatever they want to try, and will keep trying until they find relief.

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