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About the Cluster Headache Support Group

The Cluster Headache Support Group, Inc. is a 501(c)(3) non-profit organization dedicated to improving the lives of those suffering with cluster headache and other trigeminal autonomic cephalgias through research, education, scientifically-backed Information, and compassionate support. We provide practical, relevant information for the patient community and help patients learn to live with this debilitating disorder. We also drive scientific research in collaboration with physicians, pharmaceutical companies and other healthcare delivery services to find better treatment options that increase the pain-free time available to patients. Our ultimate objective is to work with our strategic partners to find effective prevention strategies, and eventually a cure, for cluster headache and related disorders.

Information Privacy

This privacy policy discloses the privacy practices for The Cluster Headache Support Group, Inc. (CHSG). This privacy policy applies solely to information collected by CHSG.

Information Collection, Use, and Sharing

We are the sole owners of the information collected on web sites owned and operated solely by CHSG, through online payment providers, or submitted directly in hard copy to CHSG. We only have access to/collect information that you voluntarily give us via email or other direct contact from you. We will not sell or rent this information to anyone. We will use your information to respond to you, regarding the reason you contacted us. We will not share your information with any third party outside of our organization, other than as necessary to fulfill your request, e.g. to ship an order. Unless you ask us not to, we may contact you via email in the future to tell you about specials, new products, services, or information, or changes to this privacy policy.

Your Access to and Control of Information

You may opt out of any future contacts from us at any time. You can do the following at any time by contacting us via the email address or phone number given on our website at https://chsg.org:

• See what data we have about you, if any.
• Change/correct any data we have about you.
• Have us delete any data we have about you.
• Express any concern you have about our use of your data.

Security

We take precautions to protect your information. When you submit sensitive information, your information is protected both online and offline. Wherever we collect sensitive information (such as credit card data), that information is encrypted and transmitted to us in a secure way. You can verify this by looking for a closed lock icon at the bottom of your web browser, or looking for “https” at the beginning of the address of the web page. While we use encryption to protect sensitive information transmitted online, we also protect your information offline. Only employees who need the information to perform a specific job (for example, billing or customer service) are granted access to personally identifiable information. The computers/servers in which we store personally identifiable information are kept in a secure environment.

Updates

Our Privacy Policy may change from time to time. If you feel that we are not abiding by this privacy policy, you should contact us immediately.

Intellectual Property

Unless otherwise stated, the content of this site is licensed under Creative Commons Attribution-ShareAlike 3.0 License

Unauthorized use of Copyrighted material

Under no circumstance should material copyrighted by another party that is prohibited from duplication be posted on this site without the express permission of the copyright owner or their delegate. Copyrighted material that is not accompanied with a letter of permission will be removed from the site.

Emergency Support Options

1. Cluster Headache has been nicknamed “Suicide Headache” for good reason. Coping with the pain and stress of this disease can overwhelm any of us at any time. Talking about our shared struggle, including depression and suicidal thoughts, is encouraged. We need to support each other.
2. However, we are not a therapy group, nor do we offer counseling. We do care about your safety and take threats of self-harm seriously.  In the unfortunate event that someone does post a specific threat of intent to self-harm, we will take action in the following ways:
   • We will attempt to contact the member to verify safety
   • We will provide links to appropriate services, including referral to the appropriate emergency and/or mental health services.

Crisis Services

United States: National Suicide Prevention Lifeline – 800-273-TALK (8255)
UK: OUCH Helpline – 01646 651 979
Australia: OUCH Helpline – 13 11 14
Other helplines: https://www.suicide.org/international-suicide-hotlines.html

Disclaimer

All information contained on this web site is for informational purposes only and is not a substitute for professional medical advice or treatment, including mental health care. . This site is a joint work of the membership and does not necessarily represent the opinions of The Cluster Headache Support Group, its board members, or corporate executives. Information from this site or elsewhere on the Internet is not a replacement for medical guidance from a qualified medical professional and should be discussed with your doctor.