stigma of beeing sick

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    • #11085
      Anonymous
      Inactive

      man, nobody believs me, they dont understand tht im still alive.
      i think i might ne the worst case of abuse of a clusterheadache surviver, wondr if anyone else has had this happen to them.

      been waching videos on youtube of attacks people are posting, i have re traumitized to a point where i cannot function anymore, i used to be proud that i made it this far but without lov and support, theres only one way out.

      i noticd on those videos right away the differnece between them, you and me. they all have someone who loves them and support them. ive been at this since i was twelve and was labelled a liar and drug seeker by my doctor. so my family has never supported me. in 2006 my family left me for dead at the hospital, i was still undiagnosed, in hospital they shot me up with 5 mg of morophine and i would pass out instantly for 3-4 hours.

      on the fourth morning i woke to a nurse crying two white oats and a lawyer trying to solve thier legal matter about me. see when the nurse started her shift, she couldnt find my pulse or my breathe and they figured i would die. by the grace of god i woke up, then another 3 days of beeing shot up.

      i dont remember musch from this experience….i know tht no one came to save me cause my mentaly ill sister told everyone i was haveing a mental breakdown, cause they dont know my pain is real. they still dont.

      my brother showed up other day and was yelling at me tht i ruined this family……

      so now i am so desperate for help

      i went 24 years without a diagnoses and was refused help every time i went to hopital, my family doctor would turn his back on me when i would go there…….

      so i am at a point where ive been chronic for 6 years now and bankrupt , lost my business and cant ask for help cause last time i ask a family member to get me an oxygen tank(40 buks) they threathend me with forced rehab for oxygen.

      i thought i might come here and post all of this, in case i dont make it at least there is some record of my life, cause they think im a drug addct and they treat me this way. they brainwashed my father into thinking im mentally ill.

      trying to find a human rights lawyer but i cant find one………..

      to sum it up…..i have survived now for 34 years like this on my own but now am at the end, i am facing homelessness but this is not an option, oxygen tank to heavy to walk around with and my support animal is pretty much only love i have now.

      been living in isolation now for a year to protect myself from my sisters and now i am getting close to becoming a statistic.

      really, i survived all this just to be bullied into killing myself,

    • #11087
      Rachel CrawfordRachel
      Moderator

      This is terrible. I am so sorry that you are getting no support. While the community can’t offer financial assistance, I encourage you to join the Facebook group for this organization. There are over 9,000 members, and it’s very active – more so than the forums here at this time. There may even be somebody in your area that could point you to a better doctor. Where are you located?

      Here’s the Facebook group. https://www.facebook.com/groups/CHSupport/

      You have to answer three simple questions to be admitted. Honestly, I have met some of the most important people in my life through this group. I’ve met a lot of people with CH in person through it too.

      One of the most comforting things is that feeling of community – knowing that you aren’t the only one who feels this way.

      I hope you join and engage and find the support you need.

    • #11088
      Rachel CrawfordRachel
      Moderator

      This is terrible. I am so sorry that you are getting no support. While the community can’t offer financial assistance, I encourage you to join the Facebook group for this organization. There are over 9,000 members, and it’s very active – more so than the forums here at this time. There may even be somebody in your area that could point you to a better doctor. Where are you located?

      Here’s the Facebook group. https://www.facebook.com/groups/CHSupport/

      You have to answer three simple questions to be admitted. Honestly, I have met some of the most important people in my life through this group. I’ve met a lot of people with CH in person through it too.

      One of the most comforting things is that feeling of community – knowing that you aren’t the only one who feels this way.

      I hope you join and engage and find the support you need.

    • #11089
      Susan Kolbskolb32
      Moderator

      Hi kingofpain, please do request to join our private support group as you will find many who understand there. Please hang in there, my friend!

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